Wednesday 16 October 2013

Drinking Cups that help children with Downs Syndrome



Drinking cups

This is an interesting subject, not a huge subject but still it’s a learning curve about DS. Babies with DS find it hard to suck due to their hypertonia so being Brest fed is quite unusual, as you may know from last year’s blog Lani was tube fed in hospital for the first 8 days – I did try and Brest feed but after 2 weeks it just wasn’t working so she was put on a bottle. The bottles had special teats and cost a fortune but that was all she could use, even as Lani grew up she could not co-ordinate her hands properly on how to hold a bottle she has always needed two handles so for a long long time I had to hold the bottle for her but now Lani has moved onto drinking from big girl bottles and we have struggled so much trying to find ones that work for her. They up until a few months ago needed the handles (which if you look at the selection available is very limited) she needed and still does need one which has to be non-drip but is not too hard to suck as Lani just doesn’t have the power to get the drink out. We now have a selection of 4 cups that we rotate

We have a two handled green beaker with a normal teat (it does drip everywhere and we need to keep an eye on that one as Lani likes to press down on it and then splash the drink everywhere!!) this one is very easy to suck from, this beaker teaches Lani to put her tong at the front of her mouth and so gives specific muscles in her mouth a good work out which will in turn help her speech. 

We also have a beaker with a straw which is non-drip and this is brilliant for Lanis mouth to learn a sucking movement which again is another mouth work out, this beaker has no handles and so she used to struggle quite a bit, she will quite often forget to hold it with the palms of her hand and she will hold it with the backs of her wrists, I have to place her hands correctly every time to show her and remind her, also another consideration for her when she uses this beaker is that you don’t tip it up to get more juice, in fact if you tip it up the juice can’t get into the straw so she had a big learning curve on that one but what a great skill to have achieved. 

Her third cup is called a 360’ it’s worth googling a picture of one, they are brilliant and a good way to introduce her to drinking from an adult cup. This one uses her lips more and an sipping motion keeping her toung down and back in her mouth again another skill and work out for her mouth. 

Lastly my lovely friend Louise brought her a cup just the same as her sons and it’s a beaker with no handles (yes she can struggle a bit, mostly when she is tired and I have to re-place her hands, but not often now) and a solid mouth piece which is non-drip, again a whole different set of mouth muscles to get a drink from but she does it and is successful. Every single thing I do with Lani is thinking about how I can get the best out of her, get her to work even when it’s a normal activity, all of these mouth skills can only bode well for her future speech, its got to be worth a go. 

Diary

Firstly I would like to apologies for not having blogged since last Thursday, late Thursday evening my husband’s step mum passed away and so we have been trying as a family to cope with such sad news. Over the next week or so I cannot say how often I will blog it will all depend on how I feel, at the moment I have lost my mojo.

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