At just 11.5 months old should we have goals for our
daughter who has Downs Syndrome.
Yes we believe we should, we feel its even more important
for Lani to be pushed (in the right direction and in the right way). Having DS
means she will develop slower than other kids so we need to start early and
develop her in a proactive way. A lot of the development we do is through play
so Lani does not even realise she is working (apart from the daily sit-ups I
make her do – she thinks they are tiresome)
Lee and I like to have goals not only for us but also Lani,
we have short term, medium term and long term goals. We believe its good to
have an aim in life and something to strive towards and then celebrate once a
goal is achieved.
So what are our goals for Lani??
Short term...
Cruising along the furniture, pulling to stand, picking something
up with a pincer grip, picking up a toy from the side of her whilst sitting, suck
from a straw.
Medium term...
Say mummy, take a step on her own, acknowledge the word “NO”,
hold her own feeding bottle, use a spoon to eat with, use a makaton sign.
Long term
Speak clearly, use makaton, walk, feed herself with food and
drink, understand “NO” and stop what she is doing.
Blog diary
23rd October 2012
Morning
I took Lani shopping at 8am.... then went to collect a
package from our sorting office which is like 100 miles away!! (a little over exaggeration
lol its only about 10miles). Then off to opportunities Group, I didn’t take
Lani into the sensory room today as all the kids decided to play in there so we
spent time mucking about in the room with all of the toys. The ladies spent good
quality time with her today and when they do I tend to back off a little so
Lani can’t see me (I tend to sit behind her) I do this so she gets used to
thinking I am not always there and she is ok and safe with other people. Good session
today.
Afternoon
Our paediatrician’s called today and we are going in to see
her on Thursday to show her the films of Lanis little turns and hopefully put
our minds at rest and tell us its all ok. I have to admit I am beyond worried,
I know she is only displaying some signs but she is my world. I just want this
to be me being over cautious, that’s fine by me.
I have been working all afternoon and trying to keep an eye
on Lani... its tuff, my work always suffers but Lani hopefully does not even
notice that I am working as what seems like every two seconds I am giving her a
new toy or showing her how to do something in hope I get just 2 minutes to
myself.
Evening
My Bff called and so I am feeling better for having talked
to her, my friend knows me so well she is truly the best friend I have ever
had. I am going now to put Lani to bed, fingers crossed she sleeps tonight.
Love you hunni xxx you dont realise how proud i am of you all xxx
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