Last Blog of the month.
This is my last blog and I want to say such a huge thank you
to everyone for reading the blog. My original aim was to help my friends and
family to see what it is like to bring up Lani, she does have DS and it does
make a difference to how we bring her up but I wanted to show how its not all
so different and it defiantly is ok to have a child with DS.
Now one month on I
am not only flattered how many people both known and anonymous have made such
nice comments about our family (one of my fears of starting this up was to have
some horrid person take the mick out of my lil girl so I am delighted that hasn’t
happened) but also how many people have said its helped them to understand DS
more. I have also made a new friend with
a local lady who has a child with DS as a direct result of this month long blog
– how cool is that, its made a real difference, I am well chuffed.
A few interesting blog stats from the month...
Top 5 posts
1)
DS diagnosis just 3 hours after birth 536
2)
The month of October is DS awareness month 359
3)
3 Main indicators Lani had which gave a DS
diagnosis 157
4)
Welcome to Holland 149
5)
Why Lanis tong does not stick out 136
Page views at point of before this last blog is
published..... 3,448 so I know we will hit over 3,500 before the day is out.
The vast majority of people read the blog via face book and
second most via google, they read it via windows then i Phone then i Pad in
third place.
We Had 11 countries involved... in order ...UK, USA, France,
Jersey, Russia , Germany, Canada, Denmark, Australia, Switzerland , New Zealand.
Thank you so much to my international friends who must have shared to their fb
or helped me spread the word xx
Its been fun but a lot harder than I realised, on average I
have spent about one and half hours per day on it so to get that back will be
nice, I will every now and then update the blog on special occasions. Its Lanis
birthday on the 7th of November so I will put up some pics of that
for you and of course let you know about her fits and how we get on with the
EEG.
The last thing I would like to talk about is my top tips,
what I have learnt, heard, practice.
Just like in the X factor....lol...”In no particular order”...
Use Makaton to help develop communication.
Look for the good in every situation – if you don’t you’ll
go mad!!!
If you meet someone who has just had a child with DS
congratulate them – its a good thing, all babies are precious.
Like on “meet the fockers” celebrate ever little achievement
and be proud, for a kid with DS to achieve it would have been so hard – if a
regular kid put in as much effort on things as a DS child has too than we would
have a high achieving nation!!!!! (This is in my opinion).
Accept all the help you can get – people want to help and if
they have the knowhow to improve your Childs life, grab it with both hands.
Apply for the benefits money you are entitled too – having a
child with DS cost serious money.
Push for Physio and speech therapy.
Never forget this is your Childs childhood, make it fun,
enjoy every moment, create memories.
No matter how your feeling on a low day always smile so your
child never knows what pain you are feeling.
Commit to show your child how to eat nutritious / healthy and
that exercise is fun (this week we have brought Lani a bike trailer so we can
go out cycling with her).
Meet up with other mums, they can be a life line.
If your not happy with a diagnosis or outcome of a situation
– push, push and push a little more till you get what you want, don’t accept no
for an answer.
Know what battles are worth the fight and walk away from
things / people that don’t make a difference.
Believe in your abilities its amazing what can be achieved
if only you believe it can be done.
Make time to chill out and play.
Thank you again for your support, what a journey were on and
to have you enjoy it with us is great. All the best in your life and if you
ever want to contact me please do so via this blog, always happy to help xx
Love
Me (Livvy Gosney) Lee (my hubby) and our special little
daughter Leilani AKA Lani, Lan, poppet, poo bum monkey fish lol.
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